Month: July 2019

Sadly, my nephew, Adam Zaitz, lost his valiant battle early Saturday morning, three weeks from diagnosis. By the time he was rushed to the hospital, Acute Myeloid Leukemia with Mutation had wracked his body, and despite his incredible will to live, this powerful disease won the war. “A horrific disease” is how it was described by one of his doctors. My sister, Michele, and brother-in-law, Ira, faced the inevitable outcome with all the deepest love a parent has and said goodbye with incredible tenderness. My sister, Mindy, flew up from Florida last week, and the four of us were present as the tubes and machines were removed so Adam could be at peace as he took his final breath.

Robert Wood Johnson University Hospital in New Brunswick, New Jersey, was incredible from the minute Adam was transported there July 5th. The care from the nursing staff and physicians gave us great confidence that if there was anything that could be done to save Adam, they would provide it. And as he fought, they fought with him. However, when it became obvious that Adam could no longer muster the energy necessary to fight another day, they were with us as the end presented itself. The Chaplain stayed with us, every Nurse, Nurse Practitioner, Aide and Physician who took care of Adam came to the room to say goodbye to him and offer their most sincere condolences to all of us, hugging and supporting us with their strength and sadness…how do they deal with this every day? And the ICU sent up a table of beverages and cookies as we waited for the inevitable. Their kindness will always be in my heart, our appreciation indescribable.

As bereaved as we are, we have stories to share with each other, and joy to remember. We are a family of love, we are a family of support, and most of all, we are a family that holds up each other. At one point, during the few weeks of my daily visits to Adam, my daughter, Emily, asked me what “I want to be?” during this period of time, and I told her “the best I can be to Michele and Ira.” “Then be that!” she said. And I have tried my best to be that. But I know it is only a small thread of the fabric of this devastating moment in their lives. They have so much in front of them, so many times the empty chair at the table will fill their hearts with unbearable sadness.

Please do something loving and caring for those you love today, this week, this month and every day. In the end, and I can make this promise to you, NOTHING ELSE MATTERS…believe me, please believe me…

 

I have been a visitor in the hospital pretty much every day for the past 16 days, and I have incredible reverence for those who devote their lives to saving others! When I have been a patient so many times, I was only aware of my needs, that which was done to help me survive, too sick to focus on what miracles are performed by the day, by the hour and by the minute. My appreciation was for a warm blanket, a cool towel or a sip of water. Grateful to the medical staff for their knowledge and diligence, I had no concept of the scope of how connected a team they are. Until I was the one praying for the survival of a loved one in the waiting room, or in the patient’s room, or in the cafeteria, or anywhere near where the miracles happen.

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Living on the East Coast means sand and sun as soon as the calendar pages turn to May, and most have great difficulty saying farewell to the ocean each fall. The smells of delicious boardwalk foods, carnival-style rides, miniature golf and people-watching on the beach fill the days and nights of the summer months. It seems, for all of us, there are not enough opportunities to enjoy our vacations or weekends, and Ostomates certainly do not want our particular issues to slow us down!

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