Running into a friend I hadn’t seen in years, we greeted each other warmly. A quick discussion about our families ensued and then, the “organ recital.” You know conversation if you are of a “certain age.” It starts with which organs we still have, which are being scanned or tested in some way, which we no longer own. I mentioned that I am most fortunate to have had an ileostomy 10 years ago, and moved on. “Wait just a minute,” she said. “You must be devastated!” “Au contraire,” I said, using the two French words I know.
An ostomy is not a devastation, nor is it a failure. It is a lifesaver, and for me, not only did it save my life, it GAVE me my wonderful life. What my caring friend did not understand is that quality of life is key for so many of us. Constant visits to the Emergency Room or operating room kept my bowels functioning, but that was not living.
Predictability is an incredible gift, and peace of mind, equally so. Bowel obstructions due to dysmotility kept me prisoner, and the glorious knowledge that I can make plans and live my best life is a gift for which I feel gratitude each and every day, many times a day.
To my friend, I am hoping you have success and health with your organs, and thank you for reminding me that my goal in life is to make OSTOMY A HOUSEHOLD WORD! Saving lives is only the first part; living out our dreams follows.
Dealing with emergency rooms is a fate to be avoided! Dealing with multiple surgeries and hospital stays is not living your life. So glad you found the right path forward.